Blogging for a Purpose

Lock, load, aim, shoot…..blank.

Maybe I can’t perform under pressure, or maybe I just don’t have a strong enough passion for social media. Either way, I’m just not down with talking about the social media landscape today.

So let me start by apologizing to those of you who expect a well crafted “PR” related blog posting. Quite frankly, I’m not in the mood.

What makes my blog unique? I blog, I write, I rant, I rave; however, there is one thing that separates me from the pack.

Malcom Gladwell’s book, Outliers: The Story of Success, suggests that an individual must have 10,000 hours in a specific area to be considered an expert. Next March I will be celebrating my 24 birthday. Do the math; since my diagnosis I’ve been living with CF for over 166,440 hours. More accurately, I have been living with Cystic Fibrosis for over 210,240 hours; albeit, my diagnosis did not occur until I was 5-years-old.

What qualifies me to write about Cystic Fibrosis? It’s quite simple – I know the disease. More accurately, I live the disease day in and day out.

If 10,000 hours makes you an expert, then 200,000 + hours must make me an absolute connoisseur!

I urge you to take note of my musings; because, quite frankly, I write for a reason.

Reality Check

The Canadian Cystic Fibrosis Foundation recently released its latest advertising campaign – Drowning on the Inside. In many ways, the campaign is a form of shock advertising; the ads are controversial, disturbing and explicit. However, they are also a very accurate portrayal of what life with Cystic Fibrosis can sometimes feel like.

One video features a young child submerged in a pool of water, while another shows a child struggling to suck air through a straw.

What makes these ads so shocking?

Well, first of all, they are deliberately startling; they demonstrate the day-to-day realities of CF in a way that connects to almost anyone. Second, they all feature young children; a move that not only draws attention to the ads, but also accurately portrays the demographic most affected by the disease.

Some critics have argued that the new ad campaign is a blatant attempt by the CCFF to generate support for its cause through the inappropriate use of high impact scare tactics.

Ironically, these highly controversial ads are a breath of fresh air (no pun intended) for CF patients; most of whom often have a hard time describing how the disease truly affects them.

I would argue that the “Drowning on the Inside” campaign is no more explicit than any ad campaign released by M.A.D.D or Smoke Free Ontario. So for those of you who are offended by these ads, I ask you to reconsider the root of your disdain.

What makes these ads so shocking?

It’s not the images, the use of young actors, or the explicit analogies. These ads are shocking for one reason: they represent a truth that has never before been so accurately portrayed.


Note: To check out the rest of the “Drowning on the Inside” campaign, visit:

The Canadian Cystic Fibrosis Foudation

Bridging the Gap

Well it has certainly been a while since my last post. Between school, work, Friends For Life and the move into my new place, life has been pretty damn hectic lately! My inability to post was also directly related to the fact that I was stuck in a new house with no internet for nearly a week and a half – talk about feeling socially disconnected.

Nevertheless, the move is done and over with, the internet has been hooked up and life is beginning to regain some sense of normality again.

One of the first things I did after the Bell technician left my house was jump on Facebook to check a week’s worth of unread messages. After sifting through a plethora of evites, birthday notifications and embarrassing picture postings, I stumbled upon a message from a young lady who I did not recognize.

As I read on, I learned that she was a Cystic Fibrosis patient and that she had recently read an article that I had published in a quarterly CF publication called Circle of Friends.

The article was about a serious lung infection that I had suffered in the summer of 2007. From May until August, 2007, I battled a severe bacteria that dropped my lung function over 50 per cent and landed me in a hospital bed for a number of weeks. The article talked about the experience and how triathlon played a large role in my recuperation.

As it turned out, my new Facebook friend had stumbled upon the article and, as a fellow CFer, was inspired by what she read.

Her message talked about how she could relate to my article because she too was beginning to realize the potential limitations that CF can impose upon its victims. However, she also vowed to never let CF limit her ability to live a healthy, active, normal life.

Unfortunately, CF patients are not encouraged to associate with one another. This is because we often carry potentially harmful bacteria that can be fatal if transmitted to the lungs of other CF patients. Thus, in the interest of our health, we – as CFers – are encouraged to avoid contact with one another.

For year’s I have felt that this inability to socialize with other patients presents a real problem for those of us living with the disease. After all, who better understands the trials and tribulations of life with CF than a CF patient? I’ve often felt that, given the chance, I could make a difference in the life of other CF patients – just as they could make a difference in my life. Unfortunately, for as long as I can remember, the health risks associated with this kind of intimate contact made this dream rather unachievable.

That is, until now. The advent of social media and web 2.0 has transformed the way that people communicate and connect. For CF patients, social media represents a way in which we can share, bond and unite in the fight against Cystic Fibrosis.

I was happy that my writing had, in some small way, made a difference in someone’s life. However, I was absolutely thrilled about the fact that I was able to talk with another CF patient in a way that never would have been possible ten years prior.

So, for all of you who may question the importance of social media, I ask you to consider this example. The internet offers us, as a virtual community, an opportunity to come together, to connect and to develop relationships that simply could not exist otherwise.