Sunday, November 16, 2008

Get Me Off This Freakin' Drug











Well folks, here I am a year-and-a-half after starting my frist course of prednisone. This has turned out to be a long ass weaning process.

My goal: to get off this freakin' drug by Christmas.

Current dosage: 20 mg

Current status: no weezing, coughing, gasping or crackling.....booooooya!

Tune in next week for another exciting update!

Thursday, November 13, 2008

A Moment to Breathe

Life has been frantic lately; and I love it.

Why?

It’s quite simple really. As a CF patient, being able to live a frantic, hectic, disordered life, says a lot about ones health. We, as a collective group, tend to cherish this kind of chaos. It is a distraction from the day-to-day monotony that we are all forced to accept.

Life with Cystic Fibrosis can be painfully predictable. CF patients are victims of routine and regularity. Pills, puffers and medications must be taken on time. Clinic appointments must be scheduled and attended regularly. Treatments must be preformed, altered, and then preformed again. It is an excruciatingly dull existence.

That being said, there are times when our health co-operates. The tightness eases, the pain subsides, the coughing wanes; and, for a moment, we can truly enjoy life.

Yes, times are good.

Work is uninteresting, school is un-engaging, my bank account is empty, the Leafs can’t seem to string together more then two wins in a row and the weather is miserable. But, as any CF patient will tell you, when you can breathe – nothing else seems to matter.

My only hope is that I can be plagued by these ostensible “problems” a little while longer.